What's been happening

 Where to start, ok I had another operation on 28th August 2022 at the Freeman Hospital, hopefully everything has went ok and this one should be my last operation (fingers crossed).  I'm starting to feel a lot better as I wasn't to good, I had a stent in which I had to remove it myself after 5 days (wasn't as bad as I thought it was going to be), I also didn't know when I needed the toilet or not, so I had to wear pads which I wouldn't wish on anyone. Now my stent is out I'm no longer back and forward to the toilet every 30 minutes. I can't believe it's been nearly 3 years since all my trouble started with my kidney and was rushed into hospital on blues and twos. I think with everything going on with my kidney my other health problems have been worse, especially my fibromyalgia both the pain side and forgetting things as well. I've been using both my heat pad and hot water bottles for the pain, but because of the weather we've been having the heat has been bad as well.

I've been crocheting a few things for presents. I've finished a pink and white baby blanket in a pattern I've never done before and I've started a blanket for my nurse that comes out to the house to do my injections every 8 weeks, I'm not sure what colours she likes so I hope the colours I've picked are ok. My nurse has been coming out to my house for the past 5 years for me, she has always been there if I've had any problems and need to talk about it, but she has started thinking about retiring, so I wanted to make her something special for her.

Emily's went home today for a few days to spend sometime with her mam as Nikki's off work for a week. Been looking for a hotel so we can take Emily away for a few days, she's never been in a hotel before so she's looking forward to it.  Not sure where we are going to go yet, but I would like it to be somewhere we can also do something or go somewhere different.

A NEW BEGINNING

  Afternoon, it's been a long time since I've been on here, so let's get started with some new things.  I now use Instagram all the time not Facebook, I check Facebook about 2 times a week just to see what's going on in the world (if you know what I mean).

Ok, the last year and a half I've been in and out of hospital with my kidneys. After being rushed in on blue lights, then being transferred to another hospital on blue lights and told  'You're a very poorly lady', they found a lump the size of a golf ball on my left kidney, which they told me Rake Lane Hospital had known about 3 years ago but never told me and it had grown since then. I have an operation the next day to have it removed, but after two and a half hours they had to stop, and I would need another operation in about 6 weeks time once I had recovered from my first operation. On Thursday 28th July 2022 at 7:00am I will be going into Freeman Hospital, Newcastle for my 6th operation and hopefully the last one I'll need.

Since Covid-19 (coronavirus) pandemic started here in 2019, having to go through Lock down twice,  apart from going to hospital and picking up my granddaughter from school I haven't been out of the house or been in a shop or in  public places. What have I been up to all this time.......  Crocheting, I'm not sure how many blankets adult, children and baby ones I've made as well as baby dress sets, baby jackets sets, toys, scarves for the homeless, baby hats for hospitals. I also handmade crochet hearts to show someone cared, crochet crosses at Easter, crochet poppies for Remembrance Day and jewellery angels for Christmas for all the people (120) in the 2 streets where I live. So I've been busy and haven't missed going out of the house at all.

 

Something Different

Hi, not sure if this is going to work but I can only try.

I’ve never been able to get back into my blog since Andrew died not that I haven’t tried but it’s been hard.

Starting from this weekend I’m going to be putting different things on my blog, books I’ve been reading, things I’ve seen on line, on tv or anywhere really. We all get to a stage in our life’s when we’re not sure where to go or where to do (I know I do). If you want me to have a look at something you’ve done, seen or would like to know about just ask and I’ll try my best to do it. 

Not A Good Day

Sorry I missed yesterday, I had a bad day. I always know when I wake in the morning if I'm going to have a good day or a bad day.   I don't feel as bad today so hopefully I'll be ok tonight to write a bit on my wall

Day 1, 14th July 2017

My day started at 8.00am this morning with a drink and my morning tablets, without them I wouldn't be able to get out of bed. I stay in bed for another 30 minutes until my tablets kick in and I'm starting to feel like a human. I don't sleep much, I'm awake on and off all night.
8.30am time to get moving and have a shower, I need to be hoisted into my wheelchair and off to my wet room where I'm hoisted again into my shower chair.
9.30am I'm all done, showered, dressed and back into my wheelchair. Think I spend more time in my hoist in a morning than I do in my wheelchair.
I'm lucky Megan and Makenzy do breakfast for themselves and always make me a cuppa and toast.
As most of you know Megan and Makenzy are Home Educated so it's time for school work. We've done some English, Maths and then they did some of the project they are doing.  While Megan and Makenzy did school work today I've done some washing and sorting out the dinning room. I've done a bit of crafting. I'm knitting Megan a scarf in Harry Potter colours.
12.30pm Lunch time. Makenzy decided he wanted to make lunch today, toasted sandwiches.
1pm. Into the car to collect some books for Nikki (my oldest daughter), then went to my oldest son's house to drop off some bits for the wedding.
It was shopping day for us today. Shopping is the thing I most hate doing, but Makenzy loves it.  The first problem we had today was the parking, because I have a lift in my car I need the extra space at the back of my car to get my lift out. Well today someone decided they wanted to get passed me and almost hit me on my lift.  I have asked in the supermarkets if they could have a few disabled bays that are extra long for people with lifts as I know I'm not the only one that has this problem, but you would think I'm asking for money.   I only do the shopping when I have someone with me as I find it hard reaching a lot of the things I need.  It's not till your in a wheelchair that you see just how hard a simple thing like shopping is.  There's never anyone around when you want something from a shelf

 you can't reach and having to ask someone all the time does get you down and I must say I often just give up and not bother.
I got a lovely present today, a bunch of carnations from my Dad, he knows I love carnations.  Andrew always bought me carnations before he died so it's feels extra special getting them off my Dad.
Megan decided she wanted to make tea tonight and I must say I really enjoyed it.  Makenzy is the one that normally loves doing the cooking but I must say Megan has started to do more cooking and she's enjoying it a lot.  I'm not sure when the last time I made a full meal as they both want to try new things.  Megan loves making mince and dumplings or chicken wrapped in bacon. Makenzy loves making chicken curry and puddings which he's really good at.
 Once I'm at home I spend a lot of my time on my bed as it's where I'm the most comfortable, only problem with that is, if I need anything I have to be hoisted in and out of my wheelchair. Even something as going to the toilet it's as easy as you would think. If I'm on my bed I need hoisted from my bed to my wheelchair, then hoisted from my wheelchair to the toilet, then a repeat to get back on my bed.
I don't watch much telly, I do do a lot of crafting and reading. I've always even crafty but it wasn't until I had to start using a wheelchair (13 years ago)  that I got into a lot of crafts I've never done or heard of before. I remember the first time I decided to start making card, I thought I was really good at it and I enjoyed it a lot, I made Christmas cards for everyone, it wasn't until a couple of years later I found a few of the cards I had made
Today's been a really good day for me, yes I'm in pain but I can still get out and about. I take each day as it comes as I don't know how I'm going to be tomorrow until tomorrow comes.
Time for a shower and bed. I don't sleep much but I do try.
Nite, nite x

Decided on something new

Been thinking about doing this for a while, then a friend said I should do it. So I thought why not I'll do it for a while and see how things go.  I know your probably thinking what is it, well it's writing how my day has been, the ups and downs of being disabled in a wheelchair full time and being a mam to 2 teenagers. I'm not going to start it until tomorrow and it'll be at night when I write how my day has been.

In Pain

I can't believe just how much pain I'm in and it's all because the back hallway in my bungalow isn't wide enough.  When you build a bungalow for disable people, I think you should remember that 'in a wheelchair' is classes as being disabled. Don't get me wrong I love my bungalow and wouldn't give it up for anything, but i would make one thing different and that's the back hallway. My bungalow is great for my wheelchair, my kitchen has been designed so my wheelchair can fit under all the work tops and it has been fitted to a height that works for me from my wheelchair. I have a big wet room with specially designed toilet and hoist, I have a hoist in my sitting room and bedroom, I have no worry getting in and out of my back door as it is level and I have an intercom and automatic front door that I just need to press a button and it will open and close for me. My back hall away is only wide enough for my wheelchair to fit along, but I do need to turn and that's when the problem starts. I don't have enough room to turn from my dinning room into my hall, I already have a hole in my wall from my wheelchair when I turn, but yesterday when I turned I didn't have my foot tucked in far enough and it bent right back ouch. I now have one broken toe and a black swollen foot to go with it.  Even though I'm on a lot of tablets the pain is still bad. I just love hospital and doctors.
I'm stuck in bed anyway at the moment so plenty of crafting this week x